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BRUSSELS - The Anticancer Fund has shared insights from a comprehensive survey conducted in collaboration with KU Leuven and Optigage. This study highlights the influence of My Cancer Navigator, a personalized information service offered by the organization to support cancer patients. Explore these findings which shed light on how My Cancer Navigator is making meaningful differences in the lives of individuals affected by cancer.
Empowering Cancer Patients with Personalized Information
My Cancer Navigator serves as an invaluable resource for cancer patients and their families. It offers clear, reliable, and evidence-based information about cancer and its treatments to empower patients through knowledge and confidence during their treatment journey.
Survey Results Confirming Positive Outcomes
Conducted between February and April 2023, the survey involved feedback from 109 users of My Cancer Navigator. The findings demonstrate:
Enhanced Well-being: Over three-quarters 72.5 reported feeling more emotionally supported due to the service's provision of clear and comforting information about their condition.
Increased Knowledge: An impressive majority 86.3 sd they had gned a better understanding of their disease and treatment options, with examples such as patients who used My Cancer Navigator to clarify chemotherapy choices based on evidence-based explanations.
Improved Coping Skills: Almost 70 felt more equipped to manage the challenges posed by their illness dly. This empowerment was evident in patients struggling with emotional impacts who found strategies for better coping through My Cancer Navigator's resources.
Support for Caregivers: Over three-quarters 76.4 of caregivers stated they were better able to assist their patients through treatment, thanks to discussions with the physicians at My Cancer Navigator. For instance, caregivers received information that helped them understand and support patients' treatment plans more effectively in a home setting.
Enhanced Communication: Nearly half of users found it easier to discuss their preferences 48.5 and make decisions about treatment 44.0. Preparation for doctor's appointments with My Cancer Navigator enabled discussions on concerns, leading to better informed decision-making.
These findings confirm that My Cancer Navigator significantly supports cancer patients and caregivers by providing them with reliable information necessary for navigating the journey of cancer care confidently and well-informed.
Dr. Gabry Kuijten, Director Patient Information at Anticancer Fund:
s affirm our informal feedback from years of supporting individuals through My Cancer Navigator. This service acts as a valuable tool in enhancing the knowledge and empowerment of those affected by cancer, enabling them to make informed decisions about their treatment.
Commitment to Enhancing Access and Relevance
The Anticancer Fund remns dedicated to improving My Cancer Navigator to better cater to the evolving needs of cancer patients and their families. Feedback is critical as we strive for continuous improvement in accessibility, relevance, and support through our service.
Acknowledgments
We gratefully acknowledge Jorn Hermans from KU Leuven who contributed his Biomedical Sciences master thesis work on this survey. We also thank Isabelle Huys and Rosanne Janssens from KU Leuven alongside Manuel Bollue and Patrick Deroost from Optigage for their contributions in conceptualization, preparation, and conducting the study.
Important Note
The impact results of this survey were presented as a poster during the EONS17 Congress in Barcelona #ESMO2024, with poster number CN20. The abstract was published in a supplement of the ESMO Congress 2024 Abstract Book - Annals of Oncology: Impact of the free information service My Cancer Navigator according to patients and their relatives: An online survey.
Additionally, a white paper has been compiled that not only highlights the findings from this survey but also addresses unmet information needs in cancer care, emphasizing the positive effects of shared decision-making SDM on healthcare outcomes.
To access the white paper or the poster, please visit insert link here.
We appreciate your support and interest. Should you have questions related to our foundation's work or initiatives, feel free to reach out.
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